I became very ill after a tick bite in 2011. There may have been another in 2014. I was ridiculed for years by the NHS. Hospitalised for acute hepatitis 2014 no test done on tick related disease. Was a carer for my Mum. 2015 mum fell, dislodged a hip implant, underwent operation, ended up with drop foot. I myself fell down the stairs three months after fracturing my wrist healing with no rotation. It took months of fighting the NHS to get a second op to fix this during which another bone was accidentally broken. I was said to have regained some rotation but was in plaster for months due to osteoporosis.
We moved from the area to try to get closer to family, finally ending up in a small town. I was still suffering so I went to a private English lab, spent a lot of money and had specialist tests. The results were concerning especially on two infections together on a page. At this point the NHS stepped in again. I found the level of secrecy on these things very strange. I did some research and that research raised many questions which I was fool enough to voice. At that point some medical records were removed although some were missing anyway.
My Mother was taken away supposedly with dementia and we ended up in a court of law. Social services denied I had osteoporosis, denied I had any fractures, and the scars from the latter was held to be self harm. Of course tick related diseases were presented as fictional. Considering medical records had been removed on these that matter on the bones had to stand uncorrected. The tick related diseases were displayed in court to everyone’s consternation. I got Mum back, but she was never the same again, she had been told I was a bad person, her heart was broken and she said she had endured abuse whilst being in care, this account was discounted as dementia. I in turn was not allowed osteoporosis, osteoarthritis nor fractures on my medical records.
Mum had a stroke in July 2020 in covid. I got to the hospital to find the consultant shifting on his seat explaining that there was nothing they could to do for her as there was too much damage. But it is at that point he told me she had a hernia that had pushed up into the lung which explained a lot. He refused to operate. But they had found this hernia and never informed the Court at time of the case. Mum was in hospital, a few days later I walked in to find a lump on her forehead and a graze on her cheek. My family and myself were allowed to stay with her whilst she was put in the end stage pathway. It was a miserable drawn out end. I grieve for the last year of my Mums life, I grieve the heartbreaking time she was separated from her family.
As for me I moved from the area after her death. I dumped the NHS as a dishonourable organisation which messes with people medical records and went private. I tried another NHS GP who was pretty insulting on first meeting. Unfortunately I saw a private consultant in osteoarthritis of the hip (supposed to be fictitious remember) and I found I needed two hip replacements. The consultant skipped my my private GP who had referred and wrote to the NHS GP. Wrong move.
This is my story as a: Patient
NHS Trust (or Provider): Don’t know/prefer not to say
Timespan: 2019 onwards
Did you complain?: Yes
Did the Trust (or Provider) retaliate?: Yes
I had left the NHS anyway. I had written many complaints about our treatment by the NHS . I explained I was forced to leave the area as I was not allowed osteoporosis, not osteoarthritis, nor past fractures with rotation problems. The house was on the market. After making that complaint I was visited by two buyers coming through the estate agent. These people came inside my house, and it became obvious they were not buyers, threatening me, slamming doors, opening cupboards and a drawer looking for the medical records I now held. They showed no I.D, and hid their car on another road. I kept my cool and treated them as buyers but going down the stairs with these people behind me was pretty hair raising due to my mobility issues. I heard one swearing at my difficulty with stairs.
After that episode I went and stayed with a friend out of area whilst I sold the house. At present I am still in a battle with the NHS for it must stand to misleading a court due to missing medical records. There is still hostility, still missing medical records and I would not want to be in an NHS hospital as I value my life. I managed to figure out the laws broken on this matter which tend to be criminal rather than civil. I would also point to the law on body parts along with the biological substances act 2004. These are very relevant in my case.
Would you recommend PALS as an impartial intermediary?: No
After investigation, did the Trust (or Provider) respond satisfactorily?: No
Did you take your complaint to the Ombudsman (PHSO)?: No
Your ethnicity: White British
Have you experienced suicidality due to this?: No
Are you autistic?: No
Are you disabled as defined under the Equality Act 2010?: Yes
